Thursday, March 6, 2014

Researching research

We're taking the girls up to Seattle to support the Santa Clara Co Fire guys who are participating in the Seattle Stair Climb Team 1165....to raise funds for LLS. I just arranged a visit to Seattle Children's Hospital, where we will meet one of the doctors who was heavily involved in Gabriella's treatments by advising our doctors along the way. 

We will be taken to the Fred Hutchinson Childhood Cancer Research Center as well as the Ben Towne Childhood Cancer Research Center (who all work in conjunction with Seattle Children's Hospital on pediatric cancer research) to visit some of the researchers, scientists, and doctors who are.......basically working to save our children! I am SO excited about this, especially meeting Dr. Hawkins. 

There are four proposed pediatric cancer centers that our board is looking into funding and I'm thrilled about the research that is 
already happening at these locations.  


Stanford University associated with Lucile Packard Children's Hospital
2013-2015 (SBF) Pathway Directed Treatment for Refractory AML-consortium member

2011-2014 (SBF) Pediatric Blood & Marrow Transplant- consortium member

2011-2014  (SBF) New Approaches to Neuroblastoma Therapy- consortium member

2013 (Rally Foundation) Brain tumor research

2012 (Rally Foundation) T cell ALL research

2011 (Rally Foundation) early phase trials

2010 (Rally Foundation) Survivorship

2007 (Rally Foundation) MLL Research Mixed Lineage Leukemia


UCSF affiliated with UCSF Benioff Children's
2012-2014 (Rally Foundation) Malignant Astrocytomas brain tumors Dr. Theodore Nicolaides

2013-2015 COG Targeted therapy for ALL-consortium member

2011-2014 (SBF) Pediatric Blood & Marrow Transplant- consortium member

2011-2014  (SBF) New Approaches to Neuroblastoma Therapy (NANT)- consortium member

2010-2012 (Rally Foundation) High Grade Glioma Research

2013-2014 (Rally Foundation) Medulloblastoma, Dr. William Weiss


Seattle Children's Hospital 
2012-2014 (SBF)  Prognostic significance of gene fusion in low or high risk rhabdomyosarcoma

2011-2014 (SBF) Molecular Targeting in non-rhabdomyosarcoma soft tissue sarcoma

2013-2014 (SBF) PBMTC Late Effects (Pediatric Blood & Bone Marrow Transplant Consortium)

2013-2014 (SBF) Stand Up to Cancer/St Baldricks Dream Team

2012-2014 (SBF) Health effects after Anthracycline and Radiation Therapy (Heart Study) COG study

2013-2015 (SBF) Pathway Directed Treatment for Refractory AML-consortium member

2011-2014 (SBF) Ex vivo expanded hematopoietic progenitors for AML supportive care (reduces the risk of infection/death during neutropenia).

2011-2014 (SBF) Pediatric Blood & Marrow Transplant- consortium member

2011-2014  (SBF) New Approaches to Neuroblastoma Therapy- consortium member

2011-2014 (SBF) Pediatric Myelodysplastic Syndromes and ribosome dysfunction-consortium member


Children's Hospital Los Angeles
2011-2014  (SBF) New Approaches to Neuroblastoma Therapy (NANT)- Lead Institution

2011-2014 (SBF) Pediatric Blood & Marrow Transplant- consortium member

2013-2015 (SBF) Multimodal immunotherapy for Neuroblastoma


2009 (Rally Foundation) Relapsed ALL Leukemia

Admittedly, I'm a science nerd....I just LOVE it! And to put that with the passion I have along with my Board at Team G Childhood Cancer Foundation to find a less toxic way to CURE childhood cancer.....I'm on FIRE!!! 
Will keep you all updated on what I find!

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