G was amazing during her CT scan, which is the shortest of the three scans and done without anesthesia. After the MRI and as she was having her PET scan done, we got to meet with Dr. Marina for preliminary results. I know she was somewhat reluctant about giving us any final word because the final readings hadn't been done yet but we were very grateful to have heard the great results...the results we just felt in our gut were there. They just needed to be confirmed. As we knew and had discussed in previous conversations, the right lymph was still visible on MRI. Most likely this is scar tissue or dead tissue that will probably show up on subsequent scans but the PET would confirm this.
Adam and I stopped holding our breath after meeting with Dr. Marina and enjoyed the little jazz concert at Stanford while we waited for G to be done with the PET. At that point, Adam pulled off all of the bracelets on his arm. I quickly followed suit. We talked about taking these bracelets off after her scans...when we knew she was going to be ok. I think we both new at that moment. It was freeing.
We new Dr. Marina was going to call us later on in the day to give us preliminary readings for the PET. Uncle Ronnie stopped by and we were all resting on the couch watching Alice in Wonderland. Then we got the call...the PET confirmed that there was no active cancer. WOW. I don't think there was a dry eye in the room (except for the girls who were intensely watching the movie). It took a while to soak in...and we are still absorbing the news. Adam grabbed the champagne and we all toasted. Our "official meeting" for results is on Tuesday but I have a strong feeling we will be hearing the same GOOD results.
We will continue to have scans every 3 months for the next year, then every 4 months for the following two years, then every 6 months for the last year. We will still hold our breath every time scans come around because the highest chance of relapse is within the first two years. But with every clear scan comes more healing and more distance from this vicious disease. For now, we'll be celebrating every moment with our girls and living life without taking anything for granted!
BOARDWALK CELEBRATION!
Admiring her face painting. Look at that gorgeous hair coming in! |
Bridget showing of her butterfly face painting. |
G, Addison and Bridget enjoying some beautiful weather. |
Whoooo Hooooooo! So, so happy for all of you. Congrats to everyone's hard work. Will continue sending positive thoughts and prayers for G and other children who have this horrible disease.
ReplyDeleteCan you hear me whoop whooping over here in Live Oak! That's fantastic. I wait to get these blogs with the latest update and this is terrific news! Love to see that hair coming in and the smile of an energized kiddo! Happiness to all (and maybe a few nights of dreamless, blissful sleep!)
ReplyDeleteWords can't express the joy in my heart when I heard that G's scans were clear!!!...I was jumping for joy in my car when Auntie Marlene called to tell me the wonderful, wonderful news!!!...I was on my way to church and said some extra prayers of thanksgiving and gratefulness for G's results!!!.....I know your heart must be bursting with happiness, joy, and thankfulness right now!!!.....
ReplyDeleteWe are rejoicing with you and will be for a long, long time!!!Please give G a big kiss from me on her beautiful head!!! (and B, too!)......Now continue to celebrate this awesome victory!!!.....Blessings to you all!!!
Much love to you all,
Auntie Carolyn
I know I'm late on this but I just can't read it without saying: Congratulations!!!!!!!!!
ReplyDeleteWhat a HUGE weight lifted for you all!!!