Thursday, March 22, 2012


I've been thinking about things over and over in my head and wondering, "What is really important right now?". I don't know. Priorities of course getting my girl better but what else really matters? I guess this really puts everything into perspective. I woke up this morning not feeling like getting out of bed. Adam was up, G was up, grandma and grandpa were up and grandma went to get Bridget. Ellie was scratching at the closet door (where she sleeps) and wanting to get out. My legs felt weak. So I rolled over and grabbed my phone to check my email and texts. Whether short or long, a story or just to say hi, we're thinking of you, just gave me that motivation to get out of bed! I thank you with all my heart for reaching out to us. I keep trying to express how much it helps. Gratitude just skims the surface of how much hope you all are giving me. I heard the voices of my babies and how happy they are; how innocent. As Adam said last night, this already has changed us. I see great things in our future. We've already watched Tangled and that song has been ringing in my mind, "And at last I see the light, and it's like the fog has lifted....everything is different, now that I've found you". I was singing it in my mind, walked out my room and heard it on the tv. Serendipitous. We're enjoying the morning playing and looking at all of the cards made by the Circle of Friends Preeschool. They are decorated with pink and purple feathers (so G), squares and wishes of good health. Bridget is running around with the balloons that Teacher Junie and Jules brought by just having a blast. Probably leaving here around 2 for our meeting at 3:15pm. Boy, that is going to be a long drive. I'm hopeful for good news today. Love you all, Kristin


  1. Hi Kristin,
    You don't know me, I am a friend of Bill Sylvester. I want to let you know that I am praying for Gabriella and your family all the time. I have to say that what you are going through will be the hardest thing you'll ever have to go through. But I believe there will be a light at the end of this and there will be some amazing things that will come of this. Gabriella is a very strong and special little girl and is so lucky to have parents like you guys. Just remember that on the days you feel like you can't get out of bed, just try to remember her and take it one step at a time. Know that it's ok to feel that way and all you have to do is take the first step...I believe God will send His love in the form of friends and family and Nurses and Doctors and they will help carry you through each day, each hour, each moment, through the good news and bad news. I am so amazed at the courage and strength you already have. My son was in the hospital for 5 months, but for different reasons and I have to say that I can relate to you about not being able to get out of bed. As time goes on, you may feel like there are more days where you don't want to get out of bed, so let others help you in any way they can. Just remember to take it truly moment by moment. I will continue to pray for all of you. Sincerely, Jennifer

  2. Hi Kristin & Adam...
    You both are so truly blessed with two beautiful girls as are they to have amazing parents like yourselves. Although the road you travel with G right now is rocky, I do hope that both of you will continue to dig deep in your souls and know in your hearts that she will prevail. There is no other option! When your thoughts remain positive, nothing but positives things will come.

    I don't know if you have read "The Secret" but it is an amazing book that I highly recommend.
    I will leave you with just one excerpt:
    If a person is focused on illness then they are inadvertently attracting more illness to them. On the other hand, if a person focuses more on health than illness, then the law of attraction must obey and produce health. The principles of the law of attraction are a powerful tool to summon the healing power within us, and can be used as an aid in total harmony with all of the wonderful medical procedures that are available today.

    Think thoughts of health and happiness for all!

    God Bless and Gabriella will remain in our thoughts and prayers!
    Gina Cali (Adam's coworker at CNT)

  3. Happy Thursday to all: thanks for your words of honesty and encouragement Kris!! Your lives will never b the same, and for the better! Through tough trials and tribulations we grow as more aware, loving conscientious and loving individuals. As you know Mike and I have had my disabled nephew, Adam for a bit over 2 years, we got him @ a very low point in his life and he needed change an lots of encouragement and love! His disease is life threatening, ataxia, and his life expectancy is 25-30 and his younger sister who is 16 is also suffering from this genetic disease and her conditions is as bad if not worse! Well, not to go into too much detail, from him we grew even more and were able to give him a personal relationship with his Jesus, who by the way is not a religion but your best and most loving friend! He recently went back home to Louisiana with the assurance and hope that his God will keep and protect him, that to us is worth more than anything in life this world has to give. Hope we r an encouragement to all of you!