Wednesday, March 28, 2012
A tough one.
Today started tough and it just keeps going. G was unable to eat anything after midnight last night and was not happy to be denied her toast and milk yesterday morning. We arrived at LPCH at the designated time of 10:00 and met with Dr. Marina. The meeting went well and she had us sign more papers and discussed what was going to transpire over the next few days. G's port would be placed and while she was under general anesthesia they would do bone marrow aspirates. The surgery center was running late due to "emergencies" and G remained NPO for an extra 3 hours which I was not happy about at all. When she was done with her surgery she woke up agitated again and they were slow to get an X-ray machine in to check the placement of her port so we got to fight her to get that done. Once the X-ray was taken we were given the delightful news that there were no more single rooms so we are currently shoe horned into a corner of another room with another family. It is now about 5:00 am and our neighbors chemo machine has alarmed about every 15 minutes since about 3 am. Thankfully G has slept through most of the alarms. In a line of dark days, this one has pushed the envelope of rediculous. I feel like I have had to fight with every person in this hospital today to get appropriate care for my kid. When Gabriella was born we were scheduled to go a very nice maternity ward in Santa Cruz but when Kris started having contractions, the place was full and we defaulted to an old and uncomfortable spot in Dominican Hospital. We fought for her then and we will fight for her now. I'm sure in a few days this will all be a distant memory but for now, God I could use some sleep.